An Answer???

Well we arrived here at 4 am, and yes, for some reason I am awake at 9. My mind won't stop working, so it makes it rather hard to sleep. The cultures are still negative and his counts are still dropping so they were able to get a stool sample this morning. They are testing for lots of stuff from C-diff to Rotavirus even for parasites. After all that he has gone through I won't be surprised if it is Rotavirus. It sounds a whole lot like it, and at this point that would be the best bet. So I guess that is what we are hoping to hear. He is sleeping right now, which is good. And as always has been very cooperative for the staff. He is such a good patient, even when he feels so awful. The one thing that always tells me he isn't feeling good is how he treats his sister and his cousin. When he doesn't feel well they can't do anything right. If they look at him he yells at them. lol

So we are unsure of how long we'll be here. I guess it all depends on that stool sample and his fever.

In other news, Cheyenne is worried about her brother. I have kept her informed of all the goings on with him. And though she is worried, I think we are both happy that she isn't here right now. These stays in the hospital are really hard on her too, because she hates to be away from me. It would be really great if one of these summers her dad would let her stay here and go to one of the camps they have for the siblings of cancer patients. I think it would be good for her. Speaking of camp, Donavynn may be going to Camp Hope next year. They usually have to be 6, but they said that they might be able to get him in. I don't know how I'll feel as the time gets closer but right now, I'm pretty excited for him. I know he'll be in good hands because the doctors and nurses from the clinic are all over up there, and they are monitored so closely. From what I hear all involved have a great time. So we'll see.

Well, I'm still waiting for someone to come in and talk to me this morning. Not sure when the doctors will be making their rounds. But as soon as I know something I'll let you all know.

Still Waiting...

For someone to tell me something, for the fever to stop coming back, for the diarrhea to stop... You name it, we are waiting for it. Last night there was a bit of an upset and I almost had to lose my mind on someone at our local hospital. I called to see about his culutres and some dumbass told me that they didn't do cultures only a CBC when I was standing right there and watched them do it. I about lost my mind, you do not mess around with a cancer patients cultures!!! Apparently there is a new computer system over there so I just needed to talk to someone who knew where to look. After tweaking out on 2 people and flipping out to my mom and husband we finally got some answers - still negative, which is good. But I'm still a nervous wreck because he just can't shake this fever! It keeps coming back, last night it got up to 104 really fast. I gave the Tylenol when I checked it and it was 102, but before the medicine could work it had already climbed up to 104. With a fever he doesn't want to do anything but lay in bed, because we can all remember having a high fever - with it comes at the very least a headache. We got the vomiting stopped the other night but the diarrhea just won't go away and we are in day 9 now! I'm pushing gatorade like you wouldn't believe trying to keep him hydrated. And he hasn't wanted to eat anything in 2 days. To put it simply I'm just a nervous wreck! I hate this not knowing what is wrong and when he is going to feel better! At least it's Monday though, depending on how he does today I may be calling to speak to his regular doctor. I think that I'm just freaking out because this is only the 2nd time since he started treatment that we were allowed to stay home with a fever and it scares the crap out of me!!! As much as we hate being in the hospital we do feel a little safer there when this is going on. I guess that is all for now, I'll keep you posted. Thanks for the prayers!

A Long Night

I took Donavynn and Derek to my friend Racheal's house last night, in hopes of them having a wonderful time playing with Connor and Trinity. All started out well and then right around dinner time Donavynn started complaining of a stomach ache and said that he wanted to go home, so we went home and I checked his temp. It was 101.2 so I called the nurse on call. Because his counts had been good Monday she told me to give him some Tylenol, hold his 6MP and call back if the fever comes back again. So that was what we did. Derek went home and I went to bed. Around 2 o'clock Dave woke me up - Donavynn was vomiting. And now his temp was back and up to 102.6 so I called the hospital and they sent us in. His ANC was 3100 so they sent us home. We'll have to wait and see if the cultures grow. But we are all hoping that it is a stomach virus. He has had the diarrhea for 8 days now and that seems to be getting better so I'm hoping that maybe the end of it is the worst and we'll be done with this soon and little D-man can get back to himself. I know he is tired of being sick and it breaks my heart to see him looking so sad. I'll keep you posted. If we end up at Mercy I'll be posting on the blogspot site.

Update

I am happy to say that we were pretty much in and out of clinic yesterday - which is rare! His ANC is 1250 and his ears look great! We are still waiting to hear back from ENT about a date as to when they are going to put the tubes in. I felt much better about our trip after hearing that his ears look good and his labs were fantastic. So just to be safe Nancy and I went through his antibiotic kit to make sure that we had everything and that nothing had expired so we can take that with us just in case. But hopefully we'll get through our trip with out any hospital stays. Of course I'm nervous, but I do feel better after yesterday. So once again he started his monthly steroid pulse, so far so good.

We have other big boy news as well. Most of you remember that we were having trouble getting Donavynn to sleep in his own bed. Well I decided that it really wasn't worth the fight during the semester because as far as I'm concerned as long as everyone is getting sleep it doesn't really matter, and during school months, mommy needs her sleep. lol Another reason was that he had dealt with a lot this semester - 2 infections meaning 2 stays in the hosptial and 2 weeks of being home with his port accessed. So we just told him that the day after his birthday he goes back in his own bed. Then I went to iTunes and burned him so music from blues clues, spongebob, etc and told him that he could listen to it in his own bed. And wouldn't you know we haven't had a single problem! He has been in his own bed now for 4 nights. We also decided that now was a good time to get rid of the pull ups at night. Accidents aren't usually a problem at night but when he was sleeping in with me, I didn't want to risk it. lol And so far that is going good too! He is getting so big so fast! And is very proud of his accomplishments. I am hoping to have time to upload all the recent pictures today... but we'll see. Ok got lots to do, just wanted to give an update.

Quick Note

I am so so sorry that I haven't updated in so long. Things have been crazy busy here. Last weekend we did a ton of yard work - it looks great now, BTW. And then I was studying for finals. Donavynn has been doing great. I de-accessed him and he has been eating well and acting great since he got home. They wanted his counts checked again because they were so high before w/ the infection so we did that yesterday - his ANC was 977 - so just about where we want it to be.

Today was his (and my) last day of school. So we are both officially on summer vacation! We are so very excited! And we are so looking forward to our trip in a few weeks! The time just can't pass quickly enough - but I know that it will be here in no time! The weeks seem to pass quicker the older you get! I guess when you want it to slow down it zips by. BTW I managed to get straight A's for my first time this semester! So I am very happy with that, as was my wonderful hubby! He has been so supportive and helpful this semester! It has been really rough on all of us, but just like everything else we pulled through it together - as a team!

Not to much going on here now that we are done with school. Looking forward to the weekend - A friend of mine is going to be coming over with her kids and Donavynn is looking forward to having other kids to play with. So it should be fun provided it stops raining. Can't complain to much seen as how it has been absolutely beautiful for the last week or so! Well it isn't getting any earlier so I should hit the sack. I just wanted to let everyone know that he is doing great! And as always he continues to make us proud every day!!!

I will update again when there is more to tell.