Donavynn had clinic today and for some reason I thought it was an LP month, apparently I was mistaken and that is actually next month. So we hung around to wait for his counts to come back and unfortunatly he won't be going back up to the 100% dose of his chemo's he is being taken off of them for the next 2 weeks. And is being taken off of Bactrim all together and being switched to Pentamadine once monthly as soon as his counts recover. I don't think the Bactrim has anything to do with his ANC being 500, actually I think he probably has another virus. His counts are doing the same thing that they did in June and his appetite has been poor with the moodiness that I mentioned the other day - these are all usually symptoms of him coming down with something. But because his ANC has been low so many times througout maintanance this is apparently protocol to switch to the Pentamadine. So we have to go next Wednesday to have his counts checked again because if they are still low we will once again have to reschedule having his tubes put in. Which is fine, I understand and agree but it is so frustrating because they take so long to reschedule the surgery that by the time it rolls around he is sick again. And to top it off his one ear is already getting red again. Sometimes I just feel so helpless in all of this. Hopefully this weeks steroids will bring up his counts enough so that he can still go through with the surgery and his ear will not get infected. The only good thing is that there is no fluid behind the drum so that is a good sign. That is about all of the updates for the day. So please pray that his counts come back up and he doesn't get an infection because they are down.
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