Meghan, Donavynn & Abbey
Nap Time
1st Night working on Mosaic
We arrived yesterday and have had a decent stay so far. Donavynn has been a little more fatigued than usual this time. But he has had fun playing and building his Cars Mosaic clay picture with me. We are hoping to go home Friday but at this time are unsure because the level they drew immediately after completing his infusion was a whopping 98.35 which is higher than it has ever been. They said it is ok, that they aren't concerned unless it was over 150 but I don't like it being that high. And since it is that high we have no idea of how fast he will clear it. The goal is for Friday and the next level won't be drawn until tomorrow morning at 10:30. They said that this is common and that they usually come down pretty quick but that isn't helping to ease my mind at the moment. He won't eat anything, and it has been like pulling teeth to get him to drink. His potassium was a little low tonight so they gave him some of that but we couldn't get him to drink it all. They'll recheck his BNP tomorrow as well so hopefully his potassium will be back in the normal range. My friends from school came for a visit tonight, Abbey and Meghan. Abbey made some awesome chili and corn bread for dinner. It was so nice to have some company and something other than hospital food. Thanks girls!
I'll post again when I have more news.
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