Sunday, March 15, 2009

Hour 42 Level

                                              Riding the whale
                                                  Giant Piano!
                                              Watching the cars

This morning at hour 42 his level was 0.76, they just drew his hour 48 level. And we should have that in the next hour or so. Donavynn and I had a very fun day today! We have always wanted to check out the playground here but never thought that we really could, because he is usually hooked up to an IV or he's in for a fever etc. Today it looked pretty nice out and so I thought it would be good to get him outside for a little while, even if it was just to sit on the bench for a few minutes. Well he got bored with car watching so I told him we would go check out the playground but I wasn't sure if he'd be able to do anything because of his IV pump. We must have looked crazy walking over there with an IV pole, but I didn't care, we were on a mission for fun! And we found it. Most all the toys on the play ground were IV pole accessible. Here are some pictures of our fun! Upon entering the park there is a giant piano that is part of the side walk, and I thought it was just decoration, turns out there are sensors so when you walk on it it plays the keys!  Donavynn loved that and spent a good amount of time on that.  After about an hour outside we went to lunch and he actually ate 1/2 of a grilled cheese sandwich and 1/2 a bag of chips.  So all around it has been a great day, we are just praying for a miracle at this point and hoping he clears tonight, however, he has never cleared in 48 hours so we are pretty sure we'll just be heading home in the morning instead.  But this stay of all of them seems to have been the easiest, perhaps because I'm on spring break and don't have so much else on my mind.  Or perhaps because we have had so many fun visitors, Abbey and Meghan, 2 of my friends from school came up Friday, and Abbey and Tim and his family came up yesterday so we haven't been lonely.  That accompanied with Skype and being able to see and talk to family and friends has made things easier.  Gonna go get some dinner, will update when I have his new level.

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