Update

Well it has been an eventful morning. He has been up and happy and two guys - Jim and Paul from Hugworks were here to sing for the kids. They were great and Donavynn loved to hear the music. They travel all over the country going to children's hospitals. So here are some pics of him from today.


The doctors were just in here and we are still waiting to see what they want to do. They are debating whether or not to hold his chemo, I'd rather they didn't because his counts are good and they didn't hold it last time, but I'm not the doctor. And they are also debating about whether or not to remove his port and put a new one in - again! Because this is the second time that he has had the same infection. But I told them that both times he had an ear infection and this bacteria is very common in the ears, so I would much rather they try putting tubes in his ears first and see if that eliminates the problem because I don't think that the bacteria are living in his port. He has suffered from repeated ear infections since he was a baby and they talked about putting tubes in before but then he got sick. His NP said she was going to see about getting him in to an ENT about that so hopefully she'll be able to do that. I really don't want him to have to go through all of that again w/ the port. It takes forever to heal and he is sore and so on. If it is needed that is one thing but I really don't think it is... we'll see. Again I'm not the doctor. So that is all that we know right now. He is taking a nap at the moment. The day has been tiring for him.