Latest Update

Donavynn is supposed to be admitted for HD Ara-C on Thursday. We will have his counts checked on Tuesday (Cheyenne leaves for Georgia on Wednesday so we can't check them then.) It is very unlikely that he will make counts b/c he just received Cytoxan on Thursday. But his hemoglobin was low (9.6) so we may need to stop in after seeing Cheyenne off and get some blood. After he does get the Ara-C we start the Erwinia and GCSF shots up again. He hates that so much, b/c both of them burn. I just pray that he tolerates them well and stays healthy this time, last cycle left him w/ an E. Coli infection which he thankfully fought off pretty quickly. That was a relief since the infections that he had the last time he had Ara-C prior to that were really nasty and left him hospitalized for weeks. This month is hard as he was supposed to be finishing treatment had he not relapsed. That is such a hard pill to swallow. But we are getting close to his schedule lightening up again. At least we can see a light at the end of this tunnel. He should finish up this insane round of treatment in October, maybe later depending on delays b/c of low counts. Then he'll have his 2 weeks of radiation (which we are dreading b/c of all the side effects of that in the short and long term) and then he'll begin maintenance again for 1 year. I want to be happy that maintenance doesn't seem so far off but I also worry about what all of these drugs are doing to his body and what the future will hold... these high doses of chemo and the radiation can cause secondary cancers, heart defects etc. I try not to think about all of that, but it is hard to be happy b/c the last time we got close and started to relax we heard that nasty R word. It is hard to believe that it has been more than 3 years since Donavynn started this battle. Time has gone by so quickly and I remember a time when it just seemed to stand still. Well I guess that is all for now. We are enjoying this week home - trying to find fun things to do before his sissy leaves. I hope everyone is enjoying their weekend.