Donavynn had clinic on Monday for his Cytoxan and Etoposide. He did really well as always and we were there for about 3-4 hours. Dr. Shore took a look in his mouth and apparently he has a small sore. I looked at it and it looks like it was already deep in the healing process, because it wasn't open anymore. So that must have happened pretty fast because I check his mouth frequently. And I ask him everyday if his mouth hurts. The good thing is that this one didn't bother him, and is healing quickly so I'm hoping that this is the only one he is going to get because not only can the Methotrexate cause them but so can the meds he just got, especially the Cytoxan. Getting him to eat yogurt has been like pulling teeth recently. His ANC was 1500 so at least he went into this week with good counts, I'm hoping that they won't drop too much but time will tell. Nancy gave me another copy of his complete protocol and it looks like we have a few more weeks of this round before he is back on the steroids again. The good thing is that from now on he won't have to take a full month of steroids it is 1 week on, 1 week off, 1 week on. So that should help a lot. And between this round and that one that should get me through the semester and then we start the Ara-C, Erwinia cycles again over the summer providing he stays pretty close to on schedule. I'm dreading that. The Erwinia scares me because of the potential to react, and it means driving up there every other day. But we'll get through it like we did last time. I learned a few things about radiation this week and how it is going to and may affect him. As many of you may know radiation can be brutal, we are hoping it won't be too bad, because if I am correct he isn't getting very much. I believe he'll be getting 12 gy. Either way, Mercy doesn't do it. He will have to go to Kansas Cancer Center in Overland Park for that. Nancy said that they will likely anesthetize him because he will be at an age where it might scare him and he may not hold as still as he should. They want to make sure that the radiation is going where they want it to. I also learned that many children recieving cranial radiation go through something called somnolence syndrome. It is where they can experience anything from drowsiness up to simply passing out for days and only waking up to eat and use the bathroom. The exact definition is Periods of drowsiness, lethargy, loss of appetite, and irritability in children following radiation therapy treatment to the head. However I have heard that some children have passed out for 4 days after radiation. But I don't know a ton about it yet so I'm still researching. I'm just glad that I learned about it before so that I didn't freak out if it happens. He is my little trooper, he has handled all of this rough chemo so far, I'm sure that he will be able to handle this because I'll be there for him!
Yesterday was my first day of this semester. And I'm so happy that I can finally say I'm officially a senior in college!!! I never thought that would happen! lol Yesterday went well, long, but good. And I'm hoping that though this is going to be a hard semester it will be a good one. Every semester we have to take a calc exam on the 1st day and you have to get 100% before you can go to clinical. I got my 100% so at least it has gotten off on the right foot.
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