Wednesday, September 10, 2008

We Are Finally Home!

Sorry to keep everyone waiting. It has been a long day. We just got home. We still don't really know much. We should have the results for the spinal fluid tomorrow morning and we are hoping that there are less blasts in there than there were on Monday. We will know about the bone marrow on Friday. We have to go back up Friday afternoon to go over that and to get the plan layed out so we know where we are going. The procedure was done so late in the day that unfortunatly we have to wait for results. The good news is that his blood work was still ok. So we are hoping that that is a good sign. Donavynn handled everything well. He was as brave as could be and I have a pic to upload later. But that won't likely be tonight. I am thorougly exhausted. We did learn however that the fact that he was in remission for 28 or 29 months is a good thing and does help alot. For right now we believe the plan will be chemotherapy and radiation in a year. A BMT was being considered as an option but we are thinking that if it is just in the CSF that that will not be needed. I can't thank you all enough for the prayers. I have to believe that he had at least one angel with him today because he was just so brave and so strong. He is my little warrior and he lives up to the meaning of his name everyday (his name means dark haired warrior). We decided this morning to try to help lighten the mood as we all had our stomach in knots... we had him wear his new tshirt that says "I put emla cream on the nurse's toilet seat!!!" Everyone got a real kick out of that and it made him smile to know that everyone was laughing at his shirt. So anyway, I will update again when I have more news. Thank you a million times over for all of the prayers and for keeping us in your thoughts these last few days. It helps to know that we aren't alone in this battle. Because it is very easy to feel that way when your world comes tumbling down like it has this week. But we are so blessed to have so many wonderful people both here beside us and here on MySpace to help us storm heavens doors with prayers and just be there if we need anything. Have a great night everyone

2 comments:

Anonymous said...

Thank you soo much for the update!!!!!! So glad you guys are home and so happy donavynn was brave today!! Very happy his blood work is good. saying prayers always!!!!!

Much Love
~Amanda~

Unknown said...

Hello team Donavynn! I came across your post today and was extremely touched by the love and support of this family. I have been working on the emla webiste and thought you might be interested in checking it out: www.ihateneedles.co.uk. Although it seems you are emla experts already there are some interesting videos from other emla users and if you'd like to upload one of your own I am sure other families would love to hear of Donavynn's story - not to mention how to get thier hands on one of those fab t-shirts. I would love the opportunity to speak to you about spreading the word on these t-shirts so if you'd like, email me at tara.hart@orbitsville.com -
many thanks!

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