Monday, November 10, 2008

Pictures From the Last Few Days, and Today's Update

Playing with Daddy


Making his about me collage


His gingerbread house he made yesterday, complete with
"autumn leaves" on the ground



Making his gingerbread house

(below is from Saturday)
Let's Race!





Today's CBC showed 2% blasts, but the doctors weren't concerned. They said that the machine probably missed them yesterday. They said it is more likely that that happened than that they were gone and rose up again. But they said they'll continue to watch them.

Donavynn has been doing really well. He's been out playing and riding his bike for a couple hours everyday since Saturday. And he hasn't been on IV fluids since then either. He is back on them now because they want to get him good and hydrated before they begin his Ara-C this afternoon. He has been so happy and feeling so good that I am sad that he has to start that up again today. I'm just hoping that maybe he won't get the fevers that the Ara-C is so famous for. He has some peeling on his hands and legs now, which they say is another common side effect of the Ara-C. Fun times!

They removed his last remaining stitch today. So hopefully that will continue to get better, and will be 100% healed very soon. He's sad to be stuck in his room right now. The only thing he wants to do is race and he can't do that with the pole, and besides the playroom is closed until 2:30 because they are having school for the older kids. Overall it has been a good couple of days, I only wish we could have been able to enjoy the at home. We are all so happy to have our happy go lucky Donavynn back!

On another note, my friend Rachael, who helped with the August benefit is in the process of organizing another one, because as I mentioned this protocol calls for many trips to the hospital and many stays for treatment, not to mention the unplanned stays due to fever. She is doing a "Breakfast with Santa" 2 weekends before Christmas. I'm sure it will be great fun. I wish that we could attend but I'm not counting on it. He starts the next phase of intense treatment at the end of this month or beginning of next month, depending on counts. But I am so thankful to have such a wonderful, thoughtful friend. Because God knows we don't have the time to do anything like that right now. I'll keep everyone updated on the benefit so if any of our local friends wish to attend with their children they can.

Well I'm going to sign off for now, I'm sure there is some homework that I could be doing. Please keep praying that he continues to do well, that the chemo doesn't make him feel too bad, or damage any part of his little body, and that he can stay healthy this time around so that we can enjoy some more time at home as a family.

No comments:

Team Donavynn on Facebook
Photobucket